Kategoriarkiv: Posts in English

Forth (and final) article published!

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Good news! The forth, and final, article from my PhD thesis is published!

The article reports a study on narrative types in Swedish journalistic newspaper stories about living with aphasia.

It is called ”Succes Stories – Narrative Types in Swedish Journalistic Newspaper Articles About Living with Aphasia” and it is published in the European Journal of Health Communication.

The publication is Open Access, which means you find the fulltext version here: https://ejhc.org/article/view/2258

The three previously published articles are about  about stigma management, identity dilemmas when living with aphasia, and literacy practices within an aphasia course at a folk high school.

Nordic Aphasia Conference Online Event 2021 – my video poster presentation

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In 2017, we met in Copenhagen. In 2019, we met in Turku. In 2021… well, we met online. I am happy that the Nordic Aphasia Conference team put together an online event instead of just postponing the planned conference.

I presented a poster about my (and Malin Hallén’s) article on narrative types in Swedish journalistic newspaper stories about living with aphasia. The poster presentations were published as short videos. Here is mine – enjoy!

Since I presented the poster, the article has been published. See https://ejhc.org/article/view/2258

Video talk: Aphasia and Narrative Agency – telling stories of self in the face of linguistic disabilities.

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I was invited to give a presentation at the Linnécentrum HEAD/CRC at Linköping University on August 26th. Nowadays (due to the ongoing pandemic) most seminars of this kind are given online, and this was no exception. One of the benefits of these video meetings is that they are easily recorded and thus possible to watch afterwards. So, here it is!

The talk is in English. I am introduced by Erik Marsja at Linköping University. At the end, I have included a few of the questions raised by participants, but excluded their voices and faces. The talk is called ”Aphasia and Narrative Agency – telling stories of self in the face of linguistic disabilities” and it is about 40 minutes.

https://cdnapisec.kaltura.com/p/1409362/sp/140936200/embedIframeJs/uiconf_id/39663391/partner_id/1409362?autoembed=true&entry_id=1_h4hmyzvp&playerId=kaltura_player_1598966533&cache_st=1598966533&width=400&height=225

……………………….
EDIT: There seems to be some issues with embedding the video! I am working on it!

Meanwhile, I hope you can access the video here:
https://cdnapisec.kaltura.com/index.php/extwidget/preview/partner_id/1409362/uiconf_id/37528091/entry_id/1_h4hmyzvp/embed/dynamic

New book on identity narratives – including my chapter on #aphasia!

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I proudly present: my first published book chapter!

I was very happy to be invited to contribute with a chapter to the book ”Identity Construction and Illness Narratives in Persons with Disabilities” edited by Chalotte Glintborg, Manuel L. de la Mata. And now, the book is published!

My (well, to be honest, Malin Hallén and Åsa Wengelin are co-authors) chapter is called ”Stories of self when living with aphasia in a digitalized society” and it is based on my PhD thesis about aphasia and narrative agency. More specifically, the chapter is about Rosa – a young woman living with aphasia and her identity re-negotiation. Is she the same as she was before her stroke, or not?

Want to know more, read the abstract or maybe order the book? Here it is:
https://www.taylorfrancis.com/books/e/9781003021612/chapters/10.4324/9781003021612-3

Third article published!

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The third out of my four planned articles has just been published!

It is about a group of people with aphasia who attended an aphasia course at a Swedish Folk High School. I stayed with them for three weeks, and studied their collective and authentic literacy practices.

The article is called ”Increased Agency through Screens and Co-Creation – Literacy Practices within a Group of People with Aphasia at a Swedish Folk High School” and it is now published in Scandinavian Journal of Disability Research.  It is an open access article, which means it is available as in full text at www.sjdr.se/articles/10.16993/sjdr.635/ 

The two previously published articles is about stigma management and identity dilemmas when living with aphasia.

Third day of the Nordic Aphasia Conference 2019 #nordicaphasia @NAC2019Turku

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Today’s theme at the Nordic Aphasia Conference is multilingualism (i.e. people speaking two or more languages). Treating people with aphasia who are multilingual is a real challenge!

The presenters, Mira Goral and Monica Norvik, raised some truly intriguing questions. How does the multilingual brain actually work? How do you know what to assess? If you need an interpreter during therapy, does the interpreter know enough about aphasia (and aphasia therapy) not to correct what the person is saying?

Since I am focused on issues of social media use, I found it particularly interesting that Monica said that social media may be used to get a picture of the person’s pre-onset use of the different language. The videos we make and post online thus become a tool for therapy, long after they were created.

The speaker to close the conference was Tom Sather from the USA. His talk was about ”flow”, or what it means to ”be absorbed in the moment” when living with aphasia. I have never come across anyone interested in this field before, and it is always fascinating to learn about new topics. He made an important point about a problem with ”aphasia friendly” material – do we over-simplify material to the extent that we take away the challenge?

Kati Renvall summed up the days by thanking everybody involved. Everybody did a very good job! I really enjoyed attending.

Finally, the next hosting city of the Nordic Aphasia Conference was revealed. It will be in Iceland! Yay! Reykjavik 2021, here we come!

Second day of the Nordic Aphasia Conference 2019 #nordicaphasia @NAC2019Turku

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After a nice welcome reception yesterday evening, and a good nights sleep, the Nordic Aphasia Conference continued today.

Like yesterday, the programme was filled with interesting presentations. I loved listening to Annie Hill and Johanna Naamanka about telerehabilitation, to Ulla Konnerup, Jane Marshall (remember EVA Park?) and Matti Lehtihalmes about therapy in virtual reality settings, to Madeleine Cruice about social media accessibility and to Katie Monnelly about the acutal technology use among people with aphasia. It is obvious that technology is an important topic within the aphasia field. Katie Monnelly concluded by saying: Get it done!

Annie Hill talking about telerehabilitation in Australia

Annie Hill talking about telerehabilitation in Australia

Ulla Konnerup talking about virtual worlds and aphasia

Ulla Konnerup talking about virtual worlds and aphasia

Katie Monnelly talking about how people with aphasia use technology

Katie Monnelly talking about how people with aphasia use technology

I also had my own presentation today. I talked about stories of self and the need to renegotiate them when acuiring aphasia. My point is that multimodal literacy practices gives a person with aphasia a choice of what to include in those stories, i.e. they increase their narrative agency.

I must say that I am a bit overwhelmed over all the positive feedback I got after the presentation. I think I am going to print the mentions on Twitter and put them on my office wall. They will make any struggling day easier, I am sure! Thank you, all.

Helena Taubner föreläser om sin avhandling

I am presenting my PhD thesis at the NAC2019 conference. (Picture stolen from @NAC2019Turku on Twitter)

 

First day of the Nordic Aphasia Conference 2019 #nordicaphasia @nac2019turku

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I am excited to be attending the Nordic Aphasia Conference 2019! This year, the conference is hosted by the University of Turku, Finland. (Last time the NAC was in Copenhagen, remember?)

Interesting presentations, inspiring conversations, new ideas and lots of nice people!

Kati Renvall opening the Nordic Aphasia Conference 2019 in Turku

Kati Renvall opening the Nordic Aphasia Conference 2019 in Turku

I especially enjoyed catching up with professor Madeleine Cruice from City, University of London during the poster session. Her work has been so inspiring to me, and I really like meeting her at conferences like this one.

Camilla Olsson from Uppsala University presenting a poster

Camilla Olsson from Uppsala University presenting a poster

Among the oral presentations, I was most inspired by Becky Moss and Abi Roper, both from City, University of London. They are both interested in writing processes of people with aphasia (which is not very common), and since that’s very close to my own project it really inspires me. I am definitly going to stay posted about their projects.

Becky Moss presented findings from a study about facilitating writing through voice recognition software, and there were some truly heart warming stories within her material. Being able to write (again) is not merely a question of putting letters together, but more importantly about keeping a story of self going and maintaining relationships.

Camilla Olsson from Uppsala University presenting a poster

Becky Moss (City, University of London) talking about writing and aphasia

Abi Roper (and a group of others, including people with aphasia) is working on a project about helping people with aphasia expressing themselves online (the INCA project). Part of the project is developing an app for ”Blackout poetry”. The app, called MakeWrite, is meant to stimulate writing in a fun and poetric way, and it is free to download. I can’t wait to try it!

Abi Roper giving a presentation about the INCA project and the MakeWrite app

Abi Roper giving a presentation about the INCA project and the MakeWrite app

The welcome reception starts in a short while, so the conversations will continue there!

 

Second article published!

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The second (out of four) article of my thesis is finally published! It is titled ”Still the same? – Self-identity dilemmas when living with post-stroke aphasia in a digitalised society” and it is based on interviews and online observations of nine individuals with post-stroke aphasia.

The journal in which the article is published is Aphasiology, and it is available in a fulltext version at https://www.tandfonline.com/doi/full/10.1080/02687038.2019.1594151

The first article, which is about stigma management in the same individuals, was published in 2017.

Sarah Scott, again

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Remember Sarah Scott? Her latest video was recorded to be shown at an aphasia conference in Australia. In it, she talks about so many things that are relevant to my thesis!

She talks about how life took a very unexpected turn when she had her stroke, and how she had to think differently about her future. She talks about how digital technology is decisive for her to communicate with others, because it enables her to convert speech into text and send it to people. She talks about people’s lacking awareness about the fact that young people can have strokes, and the importance of media representations of people with aphasia.

All those aspects of living with aphasia are included in my thesis. Coming up!