Kategoriarkiv: Afasi – Aphasia

Mina bilder kommer till nytta hos ”Cultural Encounters and Differences”

I våras var jag på Nordic Aphasia Conference i Köpenhamn. Nu har bloggen Cultural Encounters and Differences haft nytta av mina bilder från konstutställningen och körframträdandet under konferensen – det är kul att vi kan samverka om att sprida kunskap om afasi! 

Läs blogginlägget, som är skrivet av Anna-Dora Maron, på http://culturalencountersanddifferences.dk/livet-med-afasi-fra-objekt-til-subjekt




Me and my aphasia – poem by Massell I. Smith

Photo by Diego PH on Unsplash

Aphasia! A time of frightening darkness
Yet in this darkness, I have found myself,
Where an interesting new life has open to me
And inspiration has shown, honest friendship is real

Aphasia! You spark determination and humility
Awake my soul to the wonders of life
From the glory of the sunset, to the fresh morning dew
The unique experience of being alive

Aphasia! What crowded mind, unscrambled thoughts
The future looks grim, uncertainty sets in
But the intelligent mind refuses to cave in
So the struggles go on day after day
As courage endure and inner strength shines through

Aphasia! Never stop learning as babies do
Laughter’s fill the room
As funny gestures and sounds act out words in my head
Elated I stand! Joyful sounds and cheers can be heard all around
As successfully my challenges are met

Aphasia! One message is clear
Experiences in giving, is pure and a delightful joy
Receiving is equal and a blessing from above
So thanks, Is forever spoken by these lips
It’s the love and caring
Sent from the heart
And the smiles that shine through
The receiving heart

Aphasia! Humiliation you bring
My eyes are red, my cheeks are wet
Angry works burst forth as tears flow
Why should I be ashamed?
I never asked for your coming
Yet you are here to stay
But my stubborn will, restored self confidence
Invisible though you are
Our lives are intertwine as long has I live

Me and my Aphasia.

…….

(Poem by Massell I. Smith, as cited in Shadden, Barbara B., et al. Neurogenic Communication Disorders : Life Stories and the Narrative Self, Plural Publishing, Inc., 2008.)

Recommendation: the Aphasia Access Conversation podcast

The multi-professional network Aphasia Access (US) is a true inspiration! Their mission is to grow ”a network of healthcare, business, and community leaders to advance lifelong communication access for people with aphasia” based on the holistic Life Participation Approach to Aphasia (LPAA). They ”believe a world is possible where all people with aphasia participate fully in life”.23482878_10155621027065664_431936211_o

Aphasia Access produces a podcast (available at www.aphasiaaccess.org/podcasts and where ever you find your podcasts) where professionals and renowned researchers such as Aura Kagan, Nina Simmons-Mackie, Audrey Holland and Barbara Shadden (who all influenced my work significantly!) share their stories, insights and aha moments. What a great way to learn more about their experiences!

 

Välkommen till bloggosfären, Afasiforskningsbloggen! #afasi #forskning

Med glädje hälsar jag en blogg-granne välkommen till bloggosfären: Afasiforskningsbloggen på www.afasiforskning.com

Afasiforskningsbloggen drivs av Camilla Olsson och Karin Myrberg, som är logopeder och doktorander. De inleder med frågan ”Finns det ett behov av att sprida kunskap om afasi?” och jag instämmer självklart i deras ”JA”. 

Hedersuppdrag: prata om #afasi med Strokeföreningen och Afasiföreningen 

Ikväll har jag haft ett hedersuppdrag: jag har pratat om min forskning med Strokeföreningen och Afasiföreningen i Skaraborg. Att sitta på min kammare och forska blir meningsfullt först när det sker i dialog med människorna det berör. 

Så tack för att jag fick komma och prata med er och för att jag hela tiden får lov att lära mig mer av er! Och tack för rosen. 🙂

Afasidagen 2017: Afasiförbundet vägrar vara tysta

Idag, den 10 oktober, uppmärksammas afasi lite extra genom den Internationella afasidagen

Afasiförbundet (www.afasi.se), som har som slogan ”Vi vägrar vara tysta!”, går ut starkt i media idag för att uppmärksamma att stroke- och afasivården blir allt mer ojämlik i Sverige. Beroende på vilket landsting du bor i får du väldigt olika förutsättningar för en god rehabilitering, och på många platser genomförs betydande försämringar. I sitt pressmeddelande skriver Afasiförbundet (genom sin ordförande Lars Berge-Kleber):

”Ojämlikheten i strokevård och rehabilitering är stor med omfattande regionala skillnader. I Stockholm får allt färre personer allvarliga konsekvenser av en stroke till följd av snabb och specialiserad behandling med trombolys och trombektomi. I Jönköpingsregionen har antalet sjukhusplatser till personer som fått en stroke redan bantats ned med två tredjedelar. På andra håll i landet, exempelvis i Gävle, har en diskussion förts om att slå samman strokeenheten med geriatriken. Detta trots att det finns starka evidens för att vård vid strokeenhet räddar liv.”

”Att Socialstyrelsens många bra förslag i ”Vård vid stroke” omsätts i praktiken regionalt är därför avgörande för de många tusen människor som varje år får afasi efter en stroke. Såväl landsting som regioner måste ta ansvar för sina delar av vårdkedjan. Det är av högsta vikt att landsting, regioner och kommuner i Sverige rustar sin afasi- och strokevård. Nationalekonomiskt kommer det att löna sig genom ett minskat vårdbehov, lägre rehabiliteringskostnader och minskat produktionsbortfall bland personer som får stroke i yrkesverksam ålder. Utifrån ett etiskt perspektiv finns det bara vinnare.”

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Pressmeddelandet finns publicerat i en rad olika tidningar idag, som debattinlägg med lokala avsändare.

Hela Hälsingland: http://www.helahalsingland.se/opinion/insandare/stora-skillnader-i-vard-en-av-tre-far-afasi-efter-stroke

Nya Wermlands-Tidningen: http://nwt.se/asikter/debatt/2017/10/10/varden-har-blivit-allt-mer-ojamlik

Gefle Dagblad: http://www.gd.se/opinion/debatt/varden-vid-afasi-och-stroke-ar-allt-ojamlikare

Östersunds-Posten: http://www.op.se/opinion/debatt/debatt-varden-vid-afasi-och-stroke-allt-mer-ojamlik

Heja Afasiförbundet! 🙂

Twitter list about #aphasia

Twitter is the most amazing way to get in touch with interesting people! Not least have I noticed that many aphasia researchers are on Twitter – so I made a list of organisations and researchers tweeting about aphasia!

The list is public for anyone to follow. At twitter.com/heltunik/lists/afasi you find the tweets posted by the listed accounts, and at twitter.com/heltunik/lists/afasi/members you find the members of the list. Please, let me know if you think I should add anyone else!

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Nice meeting you all – Final day at the #NordicAphasia Conference

I found the final two lectures of the Nordic Aphasia Conference, given by Madeleine Crucie and Carole Pond, very inspiring. I listened to Madeleine in London this past December too, and it was a pleasure hearing her again. Her work on quality of life is essential, but today she instead talked about her recent work with the LUNA-approach to aphasia rehabilitation. It is all about meaningful personal narratives, which makes it truly interesting. Make sure to watch the videos on storieswithaphasia.moonfruit.com!
Next, Carole Pound made a extremely important point about us living in a dehumanising time, referring both to the refugee situation and to the present president of the United States. But what about health care in general and aphasia rehabilitation in particular?


To end the conference, there was a panel discussion based on questions produced (and placed in Lise Randrup Jensen’s now famous Shoe Box) by the attendees during the past two days. And what a panel it was! Elisabeth Ahlsén, Melanie Kirmess, Madeleine Cruice, Aura Kagan, Simon Horton and Carole Pound. I think I wasn’t the only one who felt all star struck!


It has been a pleasure meeting so many interesting researchers, clinicians and others during these days. Some of them were already my friends, some of them became new friends. Some of them I got a chance to talk to, others not. There is never enough time… But we’ll meet again at the next Nordic Aphasia Conference, in June 2019 in Turku, Finland!

 

Nothing new under the sun – Second day at the #NordicAphasia Conference

A parade of renowned researchers gave lectures today, during the second day of the Nordic Aphasia Conference. Julius Fridriksson (from the University of South Carolina) reminded us that every idea we can come up with probably allready has been tried out by someone else. For example, the idea of Speech Entrainment  (where the person with aphasia articulates words at the same time as someone else, looking at their mouth) was studied in 1913. He showed us a photo of the brain from one of the participants in the 1913 study and it was really striking to see the damage. 


I also enjoyed Monica Blom Johansson’s talk about the impact of aphasia on the life of significant others. She pointed out that there is a correlation between family members’ knowledge about aphasia and the quality of the relationships. The more information the family members get about aphasia, the better the relations within the family. Now, there’s a pedagogical challenge! 

 

I was also very pleased to find the most tipically Danish dessert I know, at the lunch buffé: Rødgrød med fløde. 

Conversations that matter – First day of the #NordicAphasia Conference in Copenhagen

So, what are my impressions of the first day at the Nordic Aphasia Conference in Copenhagen? What will I remember about this day? 


To be honest, I think I will most clearly remember reading a bed time story to a five year old girl – in Danish. And maybe that is what Aura Kagan’s truly inspirational talk this morning was about too… She emphasised that aphasia rehabilitation should be about conversations that really matter, instead of naming pictures or repeating phrases. And what could be more meaningful than to read bed time stories (even in a language that is far from perfect)?


This afternoon, I did my poster presentation. I really enjoyed the chats and encouragement. It is great to notice than issues of online identity are welcomed into the aphasia research field. 


Last, but certainly not least, I must acknowlede the aphasia artists showing their artwork next to the posters, and the aphasia choir giving their very first concert. Important, interesting and inspirational!